Browsing by Subject "peer support on the Internet"

Goals: The purpose of the study was to describe and analyse the content of online discussions and shared experiences among parents of children who suffer from epilepsy as well as parents' experiences with online peer support and its development. The goal was to deepen understanding of online peer support and the experiences of parents, and to develop the online activities of the Finnish Epilepsy Foundation based on the information gained. Previous studies about peer support have included group manifestations, personal experiences and peer support in community discussions. More and more peer support is available online, which has been seen in peer support studies from 2000 2009. Online peer support has been reported as both supporting and hindering empowering experiences. Previous studies have highlighted the significance of personal experiences. In this study, the concept of "experience" is defined from the standpoint of Dewey. Peer support is approached in the framework of empowerment. The study addresses four research questions. 1) What do parents of children with epilepsy write in online discussions? 2) What kind of experiences do they share in it? 3) What kind of experiences have parents had with online peer support, and which experiences further parents' empowerment? 4) How should online discussions be developed among parents? Methods: Study data was drawn from online discussions written by parents of children with epilepsy (the first message posted and the following message chain) and interviews with six (N = 6) parents who agreed to theme interviews. Web materials were written 15 June 13 December 2012. Data from theme interviews were gathered in February 2013 by interviewing parents by phone or in person. Web postings and interview content were handled using abductive content analysis, such that high rankings in the analysis utilised concepts of Siitonen's empowerment model (1999). Results and conclusions: The Internet offered parents of ill children an opportunity to share their experiences with other parents in similar life situations. In online discussions, parents shared their experiences about their children becoming ill, epilepsy treatments, support they had experienced as well as their emotions and mental images of the future. The significance of experiential data was highlighted in what parents wrote. Parents experienced the discussion environment as friendly, open, matter-of-fact and empathetic. From the standpoint of empowerment, it was significant that parents had the strength to support one another even in very difficult everyday life situations. The significance of experiences was affected by the environment of the online discussion, its content, parents' pre-conceived expectations as well as sharing emotional experiences and mental images of the future. Factors in the development of online discussions were related to briefing of the service, improved availability as well as active facilitation.