Browsing by Author "Kalliokoski, Saara"

The purpose of this study was to describe and analyze the everyday life and the challenges of epileptic children and their families. The meaning was to find out the biggest challenges of epilepsy families and children in everyday life. My interest focuses on children's participation and social cohesion in kindergarten and school, as well as other childhood environments. I studied epilepsy and experiences of parents of epilepsy children. How they have adapted to living with epilepsy? The study involved two adults who were diagnosed with epilepsy as child and five parents whose children have epilepsy. The study method was a half structured interview. Some of the interviews were done by using Skype. The interviewees were found in Facebook's Epilepsy life and Epilepsia kohtauspaikkana. The interviews took place in early spring 2016. The data was analyzed by means of abductive narrative. In analysis it was used three difference theories as an important reference: Ecological system of Branfenbrenner, participation and cohesion and resilience.Results and conclusions: The research showed that the epilepsy was seen as a challenge of today's everyday life, if after the diagnosis had been challenges with in the hospital, daycare or school. If co-operation had gone well with the mentioned parties, not everyday life seem so challenging. It is how the situation was seen to be challenging, influenced by the togetherness and participations.